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國內身體病弱相關網站

網址

財團法人罕見疾病基金會

http://www.tfrd.org.tw/tfrd/home

罕見遺傳疾病一點通

http://web.tfrd.org.tw/index.html

 

國外身體病弱相關網站

網址

Rare Disease Day

https://www.rarediseaseday.org/

Rare Disease International (RDI)

https://www.rarediseasesinternational.org/

National Organization for Rare Disorders

https://rarediseases.org/

Eurordis-European Organization for Rare Diseases

https://www.eurordis.org/

Canadian Organization for Rare Disorders (CORD)

https://www.raredisorders.ca/

New Zealand Organisation for Rare Disorders(NZORD)

https://www.nzord.org.nz/

Korean Organization of Rare Diseases (KORD)

https://www.kord.or.kr:55308/index.php

日本ASrid

https://asrid.org/en

香港罕見疾病聯盟

http://www.hkard.org/

Malaysia Rare Disease Society (MRDS)

http://www.hkard.org/

Rare Disorders Society Singapore (RDSS)

http://www.rdss.org.sg/

中國罕見病發展中心 (CORD)

http://www.hanjianbing.org/other!aboutUs

新加坡Rainbow Across Borders

http://www.rabasia.org/

Philippine Society for Orphan Disorders

http://www.psod.org.ph/

Genetic Alliance

http://www.geneticalliance.org/

March of Dimes Birth Defect Foundation

https://www.marchofdimes.org/

Malaysia Lysosomal Diseases Association (MLDA)

http://www.mymlda.com/

International Prader-Willi Syndrome Organisation

https://www.ipwso.org/

International Pompe Association (IPA)

https://www.worldpompe.org/

DEBRA International

http://www.debra-international.org/homepage.html

Thalassaemia International Federation (TIF)

http://thalassaemia.org.cy/

World Alliance of Pituitary Organizations (WAPO)

http://www.wapo.org/

Prader-Willi Syndrome Association

https://www.pwsausa.org/

中國慈娃娃罕見病關愛中心

http://www.chinadolls.org.cn/

香港肌健協會

http://www.hknmda.org.hk/index.php

香港小腦萎縮症協會

https://www.hkscaa.org/

香港馬凡氏綜合症協會

http://www.marfan.org.hk/

香港雷特氏症協會

https://www.hkrett.org/

 

 

 

 

 


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