國內身體病弱相關網站	網址
財團法人罕見疾病基金會	http://www.tfrd.org.tw/tfrd/home
罕見遺傳疾病一點通	http://web.tfrd.org.tw/index.html

 

國外身體病弱相關網站	網址
Rare Disease Day	https://www.rarediseaseday.org/
Rare Disease International (RDI)	https://www.rarediseasesinternational.org/
National Organization for Rare Disorders	https://rarediseases.org/
Eurordis-European Organization for Rare Diseases	https://www.eurordis.org/
Canadian Organization for Rare Disorders (CORD)	https://www.raredisorders.ca/
New Zealand Organisation for Rare Disorders(NZORD)	https://www.nzord.org.nz/
Korean Organization of Rare Diseases (KORD)	https://www.kord.or.kr:55308/index.php
日本ASrid	https://asrid.org/en
香港罕見疾病聯盟	http://www.hkard.org/
Malaysia Rare Disease Society (MRDS)	http://www.hkard.org/
Rare Disorders Society Singapore (RDSS)	http://www.rdss.org.sg/
中國罕見病發展中心 (CORD)	http://www.hanjianbing.org/other!aboutUs
新加坡Rainbow Across Borders	http://www.rabasia.org/
Philippine Society for Orphan Disorders	http://www.psod.org.ph/
Genetic Alliance	http://www.geneticalliance.org/
March of Dimes Birth Defect Foundation	https://www.marchofdimes.org/
Malaysia Lysosomal Diseases Association (MLDA)	http://www.mymlda.com/
International Prader-Willi Syndrome Organisation	https://www.ipwso.org/
International Pompe Association (IPA)	https://www.worldpompe.org/
DEBRA International	http://www.debra-international.org/homepage.html
Thalassaemia International Federation (TIF)	http://thalassaemia.org.cy/
World Alliance of Pituitary Organizations (WAPO)	http://www.wapo.org/
Prader-Willi Syndrome Association	https://www.pwsausa.org/
中國慈娃娃罕見病關愛中心	http://www.chinadolls.org.cn/
香港肌健協會	http://www.hknmda.org.hk/index.php
香港小腦萎縮症協會	https://www.hkscaa.org/
香港馬凡氏綜合症協會	http://www.marfan.org.hk/
香港雷特氏症協會	https://www.hkrett.org/